CECAA850 Posted August 28, 2008 Share Posted August 28, 2008 David, you have a beautiful family. I've said a prayer for your daughter Sophia and will continue to do so. My youngest daughter underwent surgery at TX Childrens hospital last month. I can appreciate what you're going through. I pray for strength for you, your daughter and your entire family. Carl Quote Link to comment Share on other sites More sharing options...
Mr. RF62 Posted August 28, 2008 Share Posted August 28, 2008 WOW, definitely in my thoughts and prayers. It IS amazing what technology and surgeons have to work with these days. Knowing what they are capable of by using these new tools and knowledge can really make surgury something a little less to worry about since earlier days. Amazing. Best wishes to a speedy recovery. Quote Link to comment Share on other sites More sharing options...
dkp Posted August 28, 2008 Author Share Posted August 28, 2008 Wow, a heartfelt thanks to all who have posted. Your comments mean a great deal to us. Sophia just went onto the bypass machine and is now at the point where the repairs are being made. Everything has progressed very smoothly today, although her oxygen level was about 7/8 points lower than normal. Carl-we saw an electrophysiologist here at DeVos Children's Hospital around a year ago when they were looking deeper into Sophia's rhythm issues. The physician came from a Texas hospital, perhaps the one you were at. His name is Arnold Fendrich and he would be listed under with their pediatric cardiologists. Thanks again to everyone who has posted. Quote Link to comment Share on other sites More sharing options...
EM3 Posted August 28, 2008 Share Posted August 28, 2008 Thoughts and prayers your way. Quote Link to comment Share on other sites More sharing options...
dkp Posted August 28, 2008 Author Share Posted August 28, 2008 A quick update: Sophia is finished with her surgery and is now in her room in the Pediatric Intensive Care Unit. Everything went very well throughout. We saw her briefly as she was being transferred from the operating room to her room in the PICU. We were able to give her a quick kiss and then she was whisked off. As you can imagine, we are on the edges of our seats as we await the phone call informing us that we may go see her. Quote Link to comment Share on other sites More sharing options...
Mr. RF62 Posted August 28, 2008 Share Posted August 28, 2008 Emotional. Thank you for the update dkp. Glad to hear it. Quote Link to comment Share on other sites More sharing options...
CECAA850 Posted August 28, 2008 Share Posted August 28, 2008 GREAT news. God's speed on her recovery. Please keep us posted. Quote Link to comment Share on other sites More sharing options...
dkp Posted August 28, 2008 Author Share Posted August 28, 2008 Last post for the night: We were able to go in and see her tonight. She is still under sedation and a paralytic so she is unaware of our presence but I am so pleased to report that my little girl is finally PINK!!!!!!! Quote Link to comment Share on other sites More sharing options...
BLSamuel Posted August 28, 2008 Share Posted August 28, 2008 Amen. Our prayers for a speedy and full recovery. Quote Link to comment Share on other sites More sharing options...
wheelman Posted August 28, 2008 Share Posted August 28, 2008 Great news! Quote Link to comment Share on other sites More sharing options...
Moderators dtel Posted August 28, 2008 Moderators Share Posted August 28, 2008 Glad to hear that. [G] Quote Link to comment Share on other sites More sharing options...
st. patrick Posted August 29, 2008 Share Posted August 29, 2008 . . . . . and even us manly types know that pink is great!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
colterphoto1 Posted August 29, 2008 Share Posted August 29, 2008 Yeah for recovery and praise for surgeons' skilled hands and God's blessing to your family. She's a cutie patootie! Quote Link to comment Share on other sites More sharing options...
Mr. RF62 Posted August 29, 2008 Share Posted August 29, 2008 Great to hear it dkp! [] Quote Link to comment Share on other sites More sharing options...
Moderators dtel's wife Posted August 29, 2008 Moderators Share Posted August 29, 2008 Thank you for the update. I know this has to be stressful. I really admire you and your family's strength. Quote Link to comment Share on other sites More sharing options...
customsteve01 Posted August 29, 2008 Share Posted August 29, 2008 Great to hear the news that she is doing well. I always hate to hear that children are sick. It also amazes me what doctors can do. Steve Quote Link to comment Share on other sites More sharing options...
dkp Posted August 29, 2008 Author Share Posted August 29, 2008 I wish I had a before and after picture of her hands. If any of you have ever seen someone who is in Congestive Heart Failure you know what the nailbeds, tongue and lips look like. Sophia's nailbeds have always been blue and her fingers swollen to the first knuckle. You can see faint traces of this in this picture but the difference is absolutely astounding. Just seeing this has brought us to tears. She is still on the ventilator but is breathing 29 breaths per minute on her own and the vent is doing about 10. They are planning on removing the vent sometime today. The rack of meds and iv pumps behind her is also being diminished. Her heart has been relying on the pacemaker a bit more than they expected but most of that data was surgery +24hours and there are still many, many variables that all play into one another that may be affecting that. All in all she is doing great. As a matter of fact, she stirred greatly this morning when she heard our voices. They are still medicating her to keep her still but I imagine she's going to really be fighting it within the next 24 hours. Sophia is definitely a fighter and they will have a hard time keeping her still. What an absolutely emotional few days it has been and will continue to be. I'm definitely going to need a vacation after this. Thanks again to all who have posted in this thread. Your support is greatly appreciated. Quote Link to comment Share on other sites More sharing options...
oscarsear Posted August 29, 2008 Share Posted August 29, 2008 Those nailbeds look wonderfully perfused and well oxygenated. I saw this thread earlier and hesitated to post because I have seen these go sideways. These are not simple procedures and she has gone through a lot. Look for good and consistent blood pressures, regular pulse rates and EKG patterns, good urine output and no fevers. Her level of consciousness should come up more and more and soon she'll be out of SICU and out to the floor. Congratulations and continued blessings. Quote Link to comment Share on other sites More sharing options...
CECAA850 Posted August 29, 2008 Share Posted August 29, 2008 Awesome!!!!! Quote Link to comment Share on other sites More sharing options...
picky Posted August 29, 2008 Share Posted August 29, 2008 Wonderful news, David. Thank you for taking the time to post us the good news. May God bless all of you! -Glenn Quote Link to comment Share on other sites More sharing options...
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