dkp Posted February 4, 2006 Share Posted February 4, 2006 My daughter, Sophia, who is just 5 1/2 months old has now had her second heart surgery and continues to be in the Pediatric Intensive Care Unit at Children's Hospital of Michigan. Please keep her in your prayers. We are literally blocks away from Ford Field, the site of the 2006 Superbowl and had some of the Pittsburgh Steelers visit the hospital earlier in the week. We didn't see them, but my wife saw a young boy carrying a Steeler's helmet that had quite a few autographs on it. Some of the Red Wings players are regular visitors to the hospital as well. If you are interested, I have a website containing a bunch of pictures and detailed news of Sophia's condition and progress. That site is: http://atrmb.atrcomputers.com/sophia David Quote Link to comment Share on other sites More sharing options...
ranjith Posted February 4, 2006 Share Posted February 4, 2006 Thanks for sharing the news with us, I hope she continues to improve tremendously over the next little while. She is lucky to have such caring parents, I looked at the website you had posted and it truly shows she is such a bundle of joy to you. Ranjith Quote Link to comment Share on other sites More sharing options...
Moderators Amy Posted February 4, 2006 Moderators Share Posted February 4, 2006 I'm glad you posted an update for us, I'd been wondering. We'll be thinking of Sophia and your family. Quote Link to comment Share on other sites More sharing options...
m00n Posted February 4, 2006 Share Posted February 4, 2006 dkp Wow, as a father myself I can only guess how troubling this must be for you guys. My thoughts and prayers are with you. I hope all went well and she eventually will become a healthy young lady. Quote Link to comment Share on other sites More sharing options...
oldtimer Posted February 4, 2006 Share Posted February 4, 2006 My niece was born premature almost a year ago, still gets sick too easily. Your daughter is in my prayers. Quote Link to comment Share on other sites More sharing options...
Daddy Dee Posted February 4, 2006 Share Posted February 4, 2006 keeping her before the Lord. Thanks for posting. Quote Link to comment Share on other sites More sharing options...
Fish Posted February 4, 2006 Share Posted February 4, 2006 You have a beautiful daughter David.We'll keep her in our thoughts,best wishes. Quote Link to comment Share on other sites More sharing options...
dbflash Posted February 4, 2006 Share Posted February 4, 2006 God Bless your daughter and your family. Danny Quote Link to comment Share on other sites More sharing options...
boomer9911 Posted February 4, 2006 Share Posted February 4, 2006 God Bless Her, to Mom and you also, be strong, our hearts are with you..stay well...[] Quote Link to comment Share on other sites More sharing options...
Marvel Posted February 5, 2006 Share Posted February 5, 2006 David, The one thing we can do is pray. Your beautiful daughter will be lifted up before the Throne of Grace, as well as the rest of the family. Bruce Quote Link to comment Share on other sites More sharing options...
Seadog Posted February 5, 2006 Share Posted February 5, 2006 David, Thanks for sharing the news. I visited your website, read many of the posts and viewed the photos. As heartbreaking as it is to see a baby like that, it is wonderful to know that modern medical science is capable of correcting that sort of thing. God bless your child, your family, and your doctors. Quote Link to comment Share on other sites More sharing options...
gonzp Posted February 5, 2006 Share Posted February 5, 2006 Thoughts and prayers from our family to yours. Quote Link to comment Share on other sites More sharing options...
DizRotus Posted February 5, 2006 Share Posted February 5, 2006 Sophia is good hands, earthly and spiritual. Quote Link to comment Share on other sites More sharing options...
SilverSport Posted February 5, 2006 Share Posted February 5, 2006 Thoughts and prayers to you and your family...if it means anything I have had two friends over the last few years with similar problems and it has turned out okay...good thoughts. Bill [A] Quote Link to comment Share on other sites More sharing options...
Myhamish Posted February 5, 2006 Share Posted February 5, 2006 good way of putting it, DizRotus - good hands, earthly and spiritual. I visited the site last night, Dave - here's wishing and praying for great days ahead for little Sophia. Take care. Hamish Quote Link to comment Share on other sites More sharing options...
dkp Posted February 5, 2006 Author Share Posted February 5, 2006 I just wanted to say thanks to all of you for the kind words, prayers and well-wishes. They are sincerely appreciated. I thought I would add a couple of photos of the three of us prior to her surgery, the second of which is not staged...lol I guess she had a little message for everyone! / / / With older sisters, Victoria and Emma. / Quote Link to comment Share on other sites More sharing options...
jt1stcav Posted February 5, 2006 Share Posted February 5, 2006 What a beautiful family! All my prayers are with you and your children, especially for the little one. Hope everything turns out well. Quote Link to comment Share on other sites More sharing options...
Timmikid Posted February 6, 2006 Share Posted February 6, 2006 All the best! Quote Link to comment Share on other sites More sharing options...
126mhz Posted February 6, 2006 Share Posted February 6, 2006 First and formost I have said a prayer for your little girl. I'm a MRI Technologist and have been in the field for many years. I worked for General Electric Medical Systems for several years teaching MRI in general and specifically cardiac MRI. I do all of the cardiac MRI at the large hospital where I work which also has a fairly large childrens hospital connected with it. Any cardiac surgery is no walk in the park so to speak but not many people know how routine many of the cardiac defects children have repaired have become. I don't know your little girl's specific issue as you have not mentioned it, but VSD's, (Ventricular Septal Defects) are most common. They can be corrected to the point where a child can live a completely normal life post op. There are many others as well, and the greatest chances are that your little girl is going to be just fine. God bless you and your family, Quote Link to comment Share on other sites More sharing options...
dkp Posted February 7, 2006 Author Share Posted February 7, 2006 126mhz, Thank you for the prayer and the information regarding CHD. My daughter has a defect known as Hypoplastic Left Heart Syndrome (HLHS). Rather than one defect, it is actually several. Unfortunately, it is the most rare of all heart defects, yet the biggest killer. Survival rates at 5 years are 70%. The latest data has not yet been published as there still is not a very good national registry, but the last set of published data gives a rate of nearly 1 in 2 that do not make it to adulthood. That being said, the past ten years has shown a much higher rate of success. We elected to pursue a staged palliation consisting of three operations (The Norwood Procedure, Hemi-Fontan, or Bi-Directional Glenn and the Fontan procedure). Sophia has just had the Hemi-Fontan and was extubated today (removal of the ventilator). Our other options were heart transplantation or comfort care, meaning a sure end within a week or so. If you are interested in learning more about this condition, I will add a couple of links for you. Thanks again to all for the encouragement. The past six months or so have been the most challenging months of my life. http://www.americanheart.org/presenter.jhtml?identifier=1353 http://www.pediheart.org/parents/defects/HLHS.htm http://www.tmc.edu/thi/lefthear.html The Norwood Procedure: http://www.uihealthcare.com/news/currents/vol1issue1/hlhs.html The Hemi-Fontan Procedure: http://www.nemours.org/internet?url=no/ncc/cardiac/flash_post_hemi_fontan.html http://www.nemours.org/internet?url=no/ncc/cardiac/crd1600.html http://www.med.umich.edu/cvc/mchc/parhyp2.htm Quote Link to comment Share on other sites More sharing options...
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